Proposing a Research Study
The Cancer Genetics Network invites individuals
to join who have a personal or family history of cancer, and who
may be interested in participating in studies about inherited susceptibility
to cancer. The CGN offers individuals a unique opportunity to keep
up to date on cancer genetics and to potentially participate in
studies.
The CGN is an important vehicle to conduct studies that will provide
much-needed clinical information to help individuals who are potentially
predisposed to cancer, or who are at high risk for cancer because
of a family history of the disease or of known genetic predisposition.
Investigators seeking to develop research projects should be aware
of the wide array of CGN resources that may be accessed to conduct
their research. In particular, investigators should note that study
design expertise and advice on research populations are available
and should be pursued early on in the planning process.
The CGN and its collaborating investigators are also supported by the
CGN Informatics Technology Group, headed by the University
of California - Irvine, Massachusetts
General Hospital, and Yale University
Informatics. This collaborative group can ship and track biospecimens
as needed, design specialized data systems to support the informatics
needs of investigators, provide biostatistical support, if desired, and
provide access to a database of 26,000
individuals with cancer and/or a family history of cancer.
Some of the available CGN resources are:
Statistical Support
Core Data from Registry of CGN Participants
Biorepository
Population and clinically based ascertainment of study populations
Infrastructure for clinical trials
Informatics support, including Trial
DB
Communication infrastructure utilizing telecommunication and Internet resources
Cancer genetics education infrastructure
Genetic counseling and behavioral research
Cancer genetics laboratories
Cancer genetic counseling and testing services
Please contact us for or information regarding available participants, specimens, and/or proposing a CGN study.